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The Waiting Game Im Really ScaredAll's good


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#1 Guest_staypuff_*

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Posted 13 September 2008 - 08:29 AM

Hi guys

12 months ago i sat here contemplating my trianing program for my big goal to run Frankston to portsea and then i headed out for my first long run toward it 34 km. Yes i built up to that lol.

Now exactly 12 months later i sit hre contemplating if i will be able to continue running at all.

as most of you know i have a rough year and over the past couple of months i have struggled to get my running back on track. Ive been getting increasing more fatigued even though im doing less than ever had pain in my hips that has moved to my back well this week the poop really hit the fan.

Ive had high bp forever and was told that through diet and exercise it should help so i lost 55kg took up running well i saw anew doc this weeks. she works with both western and eastern medicine anyway my bp was 200/ 120 she wanted me in hosptal that day i sad no. she perscribed a bp med and an antibiotic as she thinks my pain is from a viral infection..

anyway 24 hours later im back in her office so tired heart racing 100 per min my resting is usually 43. chest pain muscle cramps the works she orders n ambulance and i find myself in an emergency room..

after being pumped with drugs they started an ecg which was clear and took blood which was clear after two sets of tests they sent me home with a refferal to a cardiologist and after being seen by 2 docs and the registrar they still weren't sure what caused the pisode.

My doc did say it could be my body reacting to the bp dropping..

Anyway now im sitting here debating what to do next. Yes my bp needs looking at yes i should go have stress test and find out if there is an underlying cause of my bp being so high.. while i was in emergency the doc thought he heard a heart murmur so thatalso needs to be investigated..

will i be able to continue running i dont know the fatigue is stopping me at the moment anyway i feel like crap i feel toxic like my body is screaming for help but i dont know what it wants.. My doc has arranged for me to see a naturopath tuesday..

Should i see a sports doc to get my rfferals soemone who understands how important my running is to me or should i stick with this doc for now..

I dunno. things have spirraled out of control and i feel like im loking down the barrel of a gun i dont know which way to turn i eat a very healthy diet 99% of thetime. I dont drink smoke do drugs never have wel i smoked for like a year as a teenager.

My family history is bad for hypertension and heart disease but both parents were overweight and ate poor diets so does that count..

Anyway i hate being in limbo and it seems everywhere i turn theres just one more thing wrong with me its as though my body is slowly shutting down giving up and i dont know how to turn the process around.. Im not doing any exercise at the moment to scared until i see doc wednesday so thats adding to my feeling lousy i walk but to me thats normal anyway.

18 months ago i was overweght depressed and had all but given up then i slowly pulled myslf out of that hole and found running running was like an awakening for me i found myself i found freedom strength passion i made friendships sronger than any ive had before running is everything to me. But like the movie awakenings is this time now coming to an end im finding it incresing hard to stay up im putting on weight im tired i feel like im in reverse slowly heading back to wher i started and its scaring me

Edited by staypuff, 20 September 2008 - 06:43 PM.


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#2 Twopennys

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Posted 13 September 2008 - 08:45 AM

Take it on Puff.

Whatever is causing this identify it, hunt it down and kill it. Never seen a predator or a parasite commit suicide yet - you have to go after them!

See a hundred doctors if you have to.

No surrender.

Cheers, 2P :LOL:

#3 Guest_staypuff_*

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Posted 13 September 2008 - 08:53 AM

lol thanks Tp im trying to fight but its hard when the enemy is invisible lol..
In the last 4 weeks i've spent nearly all my savings trying to find out whats wrong with me and im still not getting any answers...

this is going to be one big obstacle for me am heading down the beach for some contemplation time.

I did contemplate going for a run and letting nature decide my fate but then thought better of that idea

#4 Colsy

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Posted 13 September 2008 - 08:58 AM

View PostTwopennys, on Sep 13 2008, 08:45 AM, said:

Take it on Puff.

Whatever is causing this identify it, hunt it down and kill it. Never seen a predator or a parasite commit suicide yet - you have to go after them!

See a hundred doctors if you have to.

No surrender.

Cheers, 2P :LOL:

What 2P said.

Sounds like you have got something alright, but you dont know what it is yet SP. It could be easy to conquer. I take it they took your pressure twice? I had a way high reading once and I asked the doctor to check it again twice. Sure enough both readings were normal.

Hang in there mate, you might just be needing a good shagging.

#5 Guest_staypuff_*

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Posted 13 September 2008 - 09:05 AM

you offering your services colsy. nows thats something i havent looked into lol

I dunno i'd like to think ts just a bug but all the signs are pointing toward the heart...

hopefully between my nwe gp the naturopath and the cardiologist they will come up with something meanwhile im eating really healthy drinking plenty have added sea salt doc said to.

have had bloods done cant do much else. Next will be change to sports doc have to seea rhuematologist as the registrar at hosp thinks my pain may be from fibomyalgia my sister has it not good if thats the case..

anyone know a good voodoo doc or indian witch doctor perhaps. Maybe im just tired lol Ive been under so much stress lately i guess soemthing had to give sooner or later and not running isnt helping in that department

#6 Colsy

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Posted 13 September 2008 - 09:13 AM

Stapuff, my old man croaked at 44 from a heart attack. I am now 41.

So at any issue in the chest area I tend to run off to the Doc demanding that he put me on one of those beep beep machines and let my wife know I love her, update my will etc etc.The doc tells me every time "Get out of my office, you're wasting my time, your heart is fine"

Dont resign yourself to the fact it is your heart just yet.

#7 Solace

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Posted 13 September 2008 - 10:38 AM

I'm so sorry to hear this is happening Staypuff.

Chin up and keep fighting.

You've got boundless support here. Don't forget it.

#8 Guest_staypuff_*

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Posted 13 September 2008 - 11:09 AM

Thanks guys i know stay positive.. Would be good if soemone told me just what i am allowed to do guess i'll have to wait till wednesday for that..

I might swim later just turn over a few laps i mean when i swim my hr rarely goes over 112 so its not exactly strenous and at least i'll feel like i exercised

#9 Sturgis

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Posted 13 September 2008 - 01:08 PM

Hi Staypuff,

I really feel for you!
As with everything, its one day at a time, no matter how daunting it may seem at the moment. Surely you will habe a diagnosis soon, that is usually half the cure.

Take care and take it easy!!!

#10 Guest_staypuff_*

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Posted 13 September 2008 - 01:25 PM

hope so been looking for answers for over a month im just not looking in the right place so yup hopefully this time i will get somewhere

#11 brizza

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Posted 13 September 2008 - 01:48 PM

hi staypuff,do you have a health fund,would you come to sydney to see a doc here,i don't really believe in alternative medicine,only common sense,good medicine and tlc,i'll look after you if you come up.pm me if you are interested and we can discuss it-briz

#12 Ron1

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Posted 13 September 2008 - 02:09 PM

"There is nothing you cannot do. There are just somethings you haven't worked out yet. "

Who said that staypuff?.

That your resting heart rate was so low is a good sign. Let's hope you get the best possible outcome. Best wishes, Ron.

Edited by Ron1, 13 September 2008 - 02:12 PM.


#13 emjay

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Posted 13 September 2008 - 02:12 PM

Hi Staypuff

after all the tough times you have been through, its not surprising that you are having problems with blood pressure and heart palpitations. stress can do terrible things to the body. lets just hope that there is nothing more serious underneath it.

stay strong, we are all thinking of you. :LOL:

MJ

#14 julz83

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Posted 13 September 2008 - 02:54 PM

ah staypuff it must be so tough not knowing but at least you have the knowledge that you have the thoughts and well wishes of so many cool runners behind you,myself included.

with the knowledge and equipment used in the healthcare system today there is no way that you wont get a solution to your problem.

from what i know of you, you are one of the gutsiest and determined people around. it wont beat you if you dont let it.

#15 maryclaire

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Posted 13 September 2008 - 02:56 PM

I can't add any words of wisdom but hope you get your answers soon. I barely know you yet know enough to recognise the fighter in you (saw evidence of that last week with Grizzly). Have you had any proper "down" time - meditation or yoga? They won't provide answers, but might put you in a frame of mind that will.

Maybe it's time to tread softly softly for a while; perhaps the path you need to take is not the one you would have chosen for yourself. While running got you where you are today and taught you a lot about yourself, maybe it's served its purpose for a while.

You know that from running great distances, it's the recovery that makes you stronger. Maybe the same analogy applies here.

Take care.

#16 wombatoutofhell

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Posted 13 September 2008 - 03:17 PM

Ronnie, that is gold throwing Staypuff's own words back at her. Great post!
Staypuff my friend, not much I can say here except what you already know-you have my number.

#17 Guest_staypuff_*

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Posted 13 September 2008 - 03:28 PM

thanks guys

brizza no i dont have a health fund funny inever get sick well not until this yearanyway..

Im hanging in there its the not knowing thats really hard just would like some answers heres smething stupid i go to gp wtith back pain fatigue and lightheadedness.

doc prescribes a bp med side effects

back pain faitgue lightheadedness.

so how do i know whats th med and whats the opriginal symptom

Mary i meditate everyday i know what your saying about runing and if i do have to let it go then i will i wont do it without a fight though i know that much... down time well apart from while i was sick no not really a couple of weeks my swim coach was jus putting the brakes on me and insisted i take some time off and that was last week and here i am so im not getting a say in it either way had planned 2 weeks but it looks like it could be longer..



ronie great words of wisdom .. and trust me im trying to stay up im just to tired to fight right now and my coach says i should just give in for a while and let me body have its way.. so i guess thats what i will do

#18 Speedgal

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Posted 13 September 2008 - 07:02 PM

Wow, you're having a rough time girl. Don't panic, your body's telling you something. Poss just a virus and you don't want to end up with cardiomyopathy so don't push it. I don't know that I'd go to a sports med doc just yet, stick with what you're doing, especially since you don't have health cover. Sending you a big hug and lots of healing vibes. Hang in there and don't give up! Keep us posted.

Edited by Speedgal, 13 September 2008 - 07:02 PM.


#19 Gadfly

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Posted 13 September 2008 - 08:26 PM

Wed must seem like such an age away Staypuff. Hold on.....see what they say and then maybe consider the sports doc.

Life has certainly thrown you some curve balls...you've dealt with all of them so far....keep it up. We'll all help in any way we can. :D :LOL:

#20 walshy2

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Posted 13 September 2008 - 08:37 PM

Staypuff

I cant really add much other than to say you are in my prayers and I hope it all works out well for you
Be positive as you have been many times in your posts here

#21 slowmo

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Posted 13 September 2008 - 10:40 PM

Hi Staypuff

Same as Walshy really - just want to say I'm thinking about you and sending positive waves.

slowmo

#22 sunny1

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Posted 13 September 2008 - 10:54 PM

Hi StayPuff, after dinner with my sister I say take a deep breath, relax, rest and don't be scared.

S1

#23 Rudolf

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Posted 14 September 2008 - 06:38 AM

View Poststaypuff, on Sep 13 2008, 01:25 PM, said:

been looking for answers for over a month im just not looking in the right place

:D :D :LOL:

#24 Ron1

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Posted 14 September 2008 - 06:44 AM

Staypuff. There is time and a season for everything. Now is the time to heal.

I saw a show on TV a while ago. I can't recall much but she said something that made me think hard on my belief that you had to fight mental illness.

I recall the story was about a person battling some illness. She said that there came a time when she realised that life is a journey and that rather than fight her ailment she would refuse to give it power by fighting. She reasoned that all she could do was acknowledge the problem and then deal with it as best she could.

She saw life as a journey and this problem was just something blocking her path. She could could give it power by fighting or just move off in another direction for the time being and make her own path and if all goes well rejoin the path further down.

So maybe don't fight it - but do all you can do is work on fixing it.

Best wishes.

Edited by Ron1, 14 September 2008 - 05:49 PM.


#25 ChookLegsMonkeyBoy

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Posted 14 September 2008 - 06:50 AM

Staypuff,
I was going to add something similar to Ron, but use a running/marathon analogy. However I can't express myself any better - so I'll simply add "stay positive and be patient".
Cheers.

#26 Guest_staypuff_*

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Posted 14 September 2008 - 08:44 AM

Grant me the serenity to
accept the things i cannot change
the courage to change the things i can and
The wisdom to know the difference

I know A friend of mine has been telling me since we met that life isnt always about fighting its about accepting things forwhat they are that to understand my present i need to look at my past actions and to see my future i need to loks at my present actions.. and this is so true..

I have been fighting a long time and now is a time to stop accept and reflect take each day as it comes and find the wonder in it..

As he says its the little things tht matter..like having french toast for breakfast lol..

My body is telling me i need to rest to stop pushing

Dean karnese talks in his new book about teaching people to windsurf and he says the girls seem to pick it up fastre because they dont fight the wind the move with it.. so this is my time to find the flow of my lifes river and go with it for a while let it take me where i am suposed to go rathr ethan me making all the decisions.. as Clinton says let go the more you cling the more chance you have of losing what it is your clinging to..

so today is a new day a day to start practising being in the moment breathing and accepting life for what it is..

#27 Guest_staypuff_*

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Posted 14 September 2008 - 10:16 AM

running has been my sanity for the last 12 months and now i have to look at my life as a whole and accpet that although running is something im passionate about and i love things change and as mary said running got me here but it may or may not continue the journey wihth me.. Like a good friend and mentor sometimes they move on before we think we are ready to go on alone but usually if we look deep within ourselves we are ready we just too busy clinging to a belief that we cant see it

#28 Rugbygal1978

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Posted 14 September 2008 - 10:46 AM

Hey Staypuff,
Just wanted to say you're in my thoughts and prayers and I hope things work out for the best.
Plus - total kudos on the massive 18 month turnaround. You're an inspiration. If you can do that, you can do anything :LOL:

Amanda/rugbygal

#29 Fitnhealthy

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Posted 14 September 2008 - 12:10 PM

Hi Staypuff

I want to say my thoughts and hugs are with you as you go through such a tough patch. With all the wonderful support of CR I know everything will work out.

I hope I can still catch up with you in Melbourne in October and I'll give you a big hug :LOL:

FNH

#30 DiJ

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Posted 14 September 2008 - 09:46 PM

Hi Staypuf,
I can't add anything that others already haven't but I do want to say my thoughts are with you and I hope that you can stay positive until you see the doctors again on Wednesday. I know that its hard but don't want to worry yourself so sick because that's an exercise in futility. You will get through this as you have everything else. Chin up girl and when you feel it dropping too far, remember WOOH's phone number and lean on him hard.
Di.

#31 AngelicOne

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Posted 14 September 2008 - 10:06 PM

Hi there SP;

Two men walk into a bar .......... you'd think one of them would have saw it !!
:D


Two bats talking to each other ... and one bat has a bleeding nose, and says, "you see that tree over there", and the other bat says, "yeah"; the first bat says, "Well, I didn't"!! :LOL:



I've got a million of 'em StayPuff ... which is very bad news for people reading this thread, but just thought I'd try and lift the spirits a bit.

From Canberra, I'm thinking of you and wishing you heaps of positive vibes ...

A.O.
:D

#32 Guest_staypuff_*

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Posted 15 September 2008 - 08:12 AM

Thanks guys

Im hanging in there just sooo bloody tired and my back has decided to go out in sympathy so im in pain as well lol.

I have decided that even if the doc's say its ok to resume running i wont be for at least another 3 weeks I need the down time i can feel it in every part of my body..

Im eating really healthy and rinking plenty i did body balance yesterday and walked the dog. not that he walks far hes more crippled than me but even doing little bits leaves me feeling exhausted so im trying to do just the minimum a bit of piates some strength training and maybe a swim if im up to it.. I need to rest but i do want to do something.

what happens happens i have no control over the outcome can only do my best to be as healthy and as fit as my body will allow..

Personaly i tink ive been so busy screaming at the world i stop to listen and the only way my body could get my attention was by throwing a tantrum.. well im listening now and its telling me i just needto sleep and let it heal

#33 Rugbygal1978

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Posted 15 September 2008 - 08:54 AM

View PostAngelicOne, on Sep 14 2008, 10:06 PM, said:

Hi there SP;

Two men walk into a bar .......... you'd think one of them would have saw it !!
:D


Two bats talking to each other ... and one bat has a bleeding nose, and says, "you see that tree over there", and the other bat says, "yeah"; the first bat says, "Well, I didn't"!! :LOL:

Is it bad that I laughed hysterically at these?

:D

#34 sunny1

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Posted 15 September 2008 - 11:02 AM

View Poststaypuff, on Sep 15 2008, 07:42 AM, said:

I have decided that even if the doc's say its ok to resume running i wont be for at least another 3 weeks I need the down time i can feel it in every part of my body..

... well im listening now and its telling me i just needto sleep and let it heal

Yaaayy! :LOL: Good for you StayPuff! I think I said to Frank in another post (about his bruised and battered foot) sometimes a little time out makes the passion and joy of running even stronger when you are able to return (or something like that).

Sweet dreams today and have a bit of a nap for me too - I have to work today. Its wild and woolly here - thunder, hail ... the weather is telling me to go to bed and I cant! :D

Take care.

#35 ican

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Posted 15 September 2008 - 01:40 PM

Hey staypuff

You are a fighter and it's hard when you don't know where the fight is...even harder while you're waiting around to find out. But you will find out and you'll come out punching, girl. In the meantime, rest your weary bod. Easy to say, I know. Am thinking of you.

#36 Guest_staypuff_*

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Posted 15 September 2008 - 02:15 PM

sorry sunny didnt mean to project the stoms that far lol

Blood test came back ok all she could say on phone as she didnt have it with hr but nothing alarming

Stress test tomorrow afternoon the girl says you have to run and im like yeah i get to run sad huh

anyway tha will be the most important one out of the way see naturopath tomorrow as well the go back to gp wednesay to discus results..
Have an appt with a sports doc not this saturday but the following one shes expensive but i want to be sure that everything the doc is doing is going to be best for me and running depending on tomorrow of course..

I feel ok today tired but ok but ive been tired for weeks so im used to that and am hoping if nothing really shows up in next couple of days the the sports doc will be able to help me get back on track as this is an area of interest for her

#37 Guest_staypuff_*

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Posted 16 September 2008 - 06:57 PM

ok so i have shingles which is causing back pain and fatigue etc

they found a heart murmur on stress test and my heart is slightly bigger than it should be so now i have to go back saturday for a echo cardiogram..

the cardiologist felt i would be ok to continue running with restrictions but wants to see echo firt

The stress test was funny they kept pushing it faster and steeper and i just kept running after 30 mins they still hadnt got me to max hr and we stopped there best workout ive had in ages good hill work lol he was impressed with my fitness even if i did put him behind time lol

anyway i feel really tired now this virus really doesnt like me exerting myself so i'll probabaly have an early night..

#38 sol

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Posted 16 September 2008 - 07:22 PM

Hey SP,

that sounds like Good News ™! I mean, it's apparently really unpleasant and nothing to be trifled with, but it can be treated and you should be fine! So do as the doctor says and get better OK?

As for the heart murmur, keep us informed on that front. Most of these things are manageable and I suspect you will be fine. Your heart might just be big because you're so fit and strong and healthy ... oh, and you just have such a Big Heart :D


Take care of yourself SP - you know we're all rooting for you ... um, so to speak :LOL:

Cheers,
sol

PS - brizza, I nearly got all teary here when I read your offer to look after Our SP. Thank you.

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Posted 16 September 2008 - 07:47 PM

thanks sol

and yes thankyou brizza i didnt thank you properly my minds been a bit foggy lately..

But it was the nicest gesture that you wanted to help me like that.. Old miler has put me in contact with a good sports doc in melb so am looking forward to seeing her

#40 Bellthorpe

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Posted 16 September 2008 - 08:07 PM

Staypuff,

As I understand it you're seeing a naturopath, a GP, a cardiologist, a sports doctor, a physio. Any others?

Do each of these know about all the others?

My concern is that you might get conflicting advice. The naturopath, for example, might tell you to take something that the cardiologist would prefer you not take.

#41 btothec

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Posted 16 September 2008 - 08:27 PM

Hey Staypuff,

Good luck with everything. I know it will all work itself out in the end. All you have achieved over this short period is amazing and an inspiration, especially to a newbie like me

BToTheC

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Posted 16 September 2008 - 08:57 PM

Hi Bt

Na i made that mistake once but this time everyone is working together or they get the flick lol so far its worked very well if they have an issue they can sort it out amongst themselves and get back to me

#43 sunny1

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Posted 16 September 2008 - 10:56 PM

Told my little sis (very clever girl that one) about your shingles and she said 'very interesting'! Apparently you can feel quite sick with shingles before they actually expose themselves as what they are, and shingles can take a while to 'expose itself'. She said it a bit more cleverly.

Anyway, listen to the Doc, and to our very clever and caring brizza (oh, and to your body too!).

Take care, thinking of you.

Sunny1
(the severe weather warning is now over here, but only after 1/2 of one of my trees migrated to the neighbour's back yard).

#44 MissPinkyInSydney

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Posted 17 September 2008 - 10:10 AM

Staypuff....
I can't really offer any advice as such, as I don't have any experience with this sort of thing but I would just like to say that I am thinking of you and wishing you a speedy recovery....as I am sure we all are on here!! :LOL:

#45 sook54

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Posted 17 September 2008 - 11:46 AM

Staypuff, just to share my husband's experience with shingles, it made him REALLY sick and they thought he had an ulcer (he had it going round his waist so affecting the stomach nerve). They were in the middle of doing a gastroscopy when they noticed the lesions beginning to appear. He took ages to recover so make sure you treat it carefully and don't overdo it while you have the virus active in your system. Good luck with your recovery!

#46 serena

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Posted 17 September 2008 - 11:58 AM

View Poststaypuff, on Sep 16 2008, 05:57 PM, said:

ok so i have shingles which is causing back pain and fatigue etc

they found a heart murmur on stress test and my heart is slightly bigger than it should be so now i have to go back saturday for a echo cardiogram..

the cardiologist felt i would be ok to continue running with restrictions but wants to see echo firt

The stress test was funny they kept pushing it faster and steeper and i just kept running after 30 mins they still hadnt got me to max hr and we stopped there best workout ive had in ages good hill work lol he was impressed with my fitness even if i did put him behind time lol

anyway i feel really tired now this virus really doesnt like me exerting myself so i'll probabaly have an early night..
Hey there staypuff I am glad to hear you have a diagnosis. It makes sense now (isn't hindsight good?!). You must be in such a lot of pain you poor love. Take it easy. Do they know where the shingles are, yet?
Sounds like good news from the cardiologist re running.
sj

#47 twosheds

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Posted 18 September 2008 - 08:37 AM

Hey Staypuff,
when i was a child my mum was hospitalised with Blood pressure of 220/150. They said she should be dead. She was in her 40s at the time. She was treated for hypertension ( obviously) and has controlled her blood presure through medication ever since.
She is now 78- still plays tennis every day and swims in the surf- summer and winter frequently.

Just wanted to share this to give you hope. It took them a while to find a suitable meds program that didnt have too many side effects ( this was in the 70s though) but she is in bloody good health for a 78 year old and has a great quality of life.
two sheds

#48 Guest_staypuff_*

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Posted 18 September 2008 - 02:28 PM

thanks guys
the shingles seem to be in my mid back and runs along the nerves and through my ribs all my back pain seems to have stemmed from that

Im feeling better today i never got lesions which is why it has gone undetected so long so hopefully now im resting it will go away..

Bp meds are doing ok they just upped the dose my doc figured better to start small and slowly build them up and bring bp down slowly rathr than the other way round which suits me as i react to tings pretty badly..

Now i know whats going on im feeling much better about it all and am actualy looking forward to the acho cardiogram as i think it will be interesting

#49 slowmo

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Posted 18 September 2008 - 02:40 PM

Hi SP,

Just popped in to see how you've been going.

Great to hear that it's only shingles... er, you know what I mean :LOL: My partner has had shingles too and I know they can be painful and debilitating, but they go away.

I guess they've had to service that treadmill after you stress tested it.

slowmo

#50 sol

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Posted 18 September 2008 - 02:41 PM

So puff, was the spot on your back that made you hit the roof related to the shingles?

My mother got this disease a few years ago and she said the pain at times was indescribable. Hopefully you will recover from it fairly quickly and be back out there. I guess the good news is that the pain is not being caused by something to do with your running, so presumably if you can withstand the pain or take something to dull it, you should still be able to run.

Good luck,
sol

PS - echos are kinda fun :LOL: Ask the sonographer if you can have a look!